22 Aug 2011

Militants Go After British Doctors

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If anyone had any doubts that Chronic Fatigue Syndrome is essentially just a medical term for a confirmed habit of whining and malingering, this news item from Britain’s Guardian describing activists’ attacks on doctors questioning or investigating CFS demonstrates the existence of the sort of political constituency which genuine illnesses just do not have.

The full extent of the campaign of intimidation, attacks and death threats made against scientists by activists who claim researchers are suppressing the real cause of chronic fatigue syndrome is revealed today by the Observer. According to the police, the militants are now considered to be as dangerous and uncompromising as animal rights extremists.

One researcher told the Observer that a woman protester who had turned up at one of his lectures was found to be carrying a knife. Another scientist had to abandon a collaboration with American doctors after being told she risked being shot, while another was punched in the street. All said they had received death threats and vitriolic abuse.

In addition, activists – who attack scientists who suggest the syndrome has any kind of psychological association – have bombarded researchers with freedom of information requests, made rounds of complaints to university ethical committees about scientists’ behaviour, and sent letters falsely alleging that individual scientists are in the pay of drug and insurance companies.

“I published a study which these extremists did not like and was subjected to a staggering volley of horrible abuse,” said Professor Myra McClure, head of infectious diseases at Imperial College London. “One man wrote he was having pleasure imagining that he was watching me drown. He sent that every day for months.”

Chronic fatigue syndrome – also known as myalgic encephalomyelitis (ME) – is common and debilitating. A recent BMJ (formerly the British Medical Journal) feature suggested that as many as one in 250 people in the UK suffers from it. Patients are sometimes unable to move and become bedridden, occasionally having to be fed through a tube. For more than 20 years, scientists have struggled to find the cause, with some pointing to physiological reasons, in particular viral infections, while others have argued that psychological problems are involved.

It is the latter group that has become the subject of extremists’ attacks. The antagonists hate any suggestion of a psychological component and insist it is due to external causes, in particular viruses. In the case of McClure, her “crime” was to publish a paper indicating that early studies linking the syndrome to the virus XMRV were wrong and the result of laboratory contamination. So furious was the reaction that she had to withdraw from a US collaboration because she was warned she might be shot.

A similar hate campaign was triggered by a study published in the Lancet earlier this year. It suggested that a psychological technique known as cognitive behavioural therapy could help some sufferers. This produced furious attacks on the scientists involved, including Michael Sharpe, professor of psychological medicine at Oxford University. He had already been stalked by one woman who was subsequently found to be carrying a knife at one of his lectures.

“The tragedy is that this tiny group of activists are driving young scientists from working in the field,” said Sharpe. “In the end, these campaigns are only going to harm patients.”

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JKB

For being chronically fatigued, they sure are a lively bunch.



MGH

This post is tagged with “The Left”?

Why?

Because the Guardian is steadfastly left-wing?

Or because the Fiona Fox quoted in the piece is, according to Wikipedia, a former member of the Revolutionary Communist Party?

Yes, the director of the Science Media Centre was once a writer for Living Marxism, where she was accused of downplaying the genocide in Rwanda. Some would say denying, but that’s another matter.

Do you actually know anything about Simon Wessely?

Or his role in the socialized NHS?

As for CFS…well, even on Free Republic you’ll find that there are enough knowledgeable posters in enough threads to provide a little more insight as to what it actually is, which is, suffice to say, neither a matter of whining nor malingering.



Maggie's Farm

Tuesday morning links…

Gun Owners: Are You Compensating for Something? Best comment there:

I’m compensating for the fact that my penis doesn’t shoot jacketed hollow points at 1000fps.

Politicizing medicine: Chronic Fatique
The unsuccessful self-treatment of a case o…



The Militant Chronic Fatiguers «

[…] of “Chronic Fatigue syndrome” not just a little suspect if those with chronic fatigue rise up to threaten death and destruction upon those who disbelieve the disease is […]



KAL

@JDZ I’m sure you thought AIDS activists were also whining and malingering. Political activism by patients is not a barometer of legitimacy, but of stigma and lack of research funding.

One you seem more than willing to perpetuate even though you are neither a biomedical or behavioral researcher or a clinician.

Even the psychiatrist who says that he is so fearful of people who are in wheelchairs and bedbound that he prefers to be in Iraqi, says it is a real disease.

He just believes that there are psychological and social overlays in some subgroups.

How is that any different from cancer, Alzheimer’s disease, MS, diabetes, Parkinsons disease etc?



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